19 yr old british student who has bizarre condition where her joints constantly pop out of place when she has s*x

A teenager whose joints dislocate 20 times a day can't have sex - without her hip popping out.Darcey Kelly, 19, has Ehlers-Danlos Syndrome (EDS) a rare and agonising condition which causes her joints to come out of place.

The conditions is so severe the University College London student has been forced to live on a liquid diet to avoid her jaw repeatedly locking.She cannot even open a bottle of water without dislocating her wrist.

The most embarrassing moment she said was when she first had sex with her boyfriend and her hip popped out of the socket.'I was quite young at the time and sex is scary anyway at that age,' she told student newspaper The Tab.

'But I was trying to go for it and then all of a sudden I heard a loud crack.

'He didn't hear it but saw I had this contorted face of pain like I looked really disgusted.

'I didn't want to hurt his ego so said 'um can you give me a minute' and I hobbled over to the bathroom to pop it back in.'And then we went back to it.'The hereditary illness means her sister, who is a circus performer, and her stuntman brother both have it but Miss Kelly is the worst affected.

Miss Kelly, from Elstree, Hertfordshire, said she can have up to 20 agonising episodes a day.'On a bad day I can't get out of bed because I've dislocated like ten things getting out of bed but on a good day I might get six dislocations.

 

'The other day I was trying to get out of bed and my hip came out, so then I fell over and my shoulder came out.'

The first year English student fears that she may struggle to hold down a full time job when she leaves university.

The life-limiting condition means her life expectancy could be limited to between 35 and 40-years-old.

But Miss Kelly remains positive despite her illness and having an operation on Wednesday to fix her badly-dislocated shoulder.

'I don't really listen to that - you get told you'll be in a wheelchair by 18 but I'm still strolling around absolutely fine-ish,' she said.  

I didn't want to hurt his ego so said 'um can you give me a minute' and I hobbled over to the bathroom to pop it back in.

'There was a time I was telling my friends about how I dislocated something and I was laughing so hard about it that I dislocated my jaw.'You have to joke, it's so much easier.'

EDS affects collagen proteins in the body causing them to be weak with typical symptoms including stretchy skin, loose joints and fragile body tissues.It causes Miss Kelly's joints to come out so often she usually tries to fix them herself.

'There are certain joints I can't do anything about, so like my ribs I have to wait to sort themselves out and my jaw results in me passing out,' she said.'Each time it happens it feels like you're breaking a bone, and when they put it back it and they're setting it it's even more painful.'It feels like you're breaking a bone 20 times a day.'

 

She is speaking out about her disease to raise awareness of invisible illnesses after she's been accused of being able-bodied and using parking spaces reserved for people with disabilities. 

Miss Kelly was attending a hospital appointment with her mother last year when she was given abuse for parking in a disabled bay.'This woman called me out and said that I'm not disabled and I'm a disgusting person,' she said.

'It's happened quite a few times and I feel like people need to understand invisible illnesses.'Just yesterday I was trying to get into my student accommodation and used a disabled gate.

'But someone came up to me to tell me I couldn't use it.'I just said straight up 'I'm disabled and what you are saying is completely able-ist.'